Good ol family time

We had a great Christmas. Family made it into town, despite the weather. Extra long/slow drive, but made it safe. I was able to get into town on Christmas Eve and pick up Baloo to take him home to surprise Paige. She loves him. Has not had much time to get to know him yet, (she is in Estes with my family/I have to work------BLAH!) He is a very good/sweet dog. More like horse. He is soooo big!
Unfortunately we did not make it to the cemetery due to the blizzard and drifting snow blocking everything. Plans were to take a tree out there. I had mixed emotions on the whole thing. I was very sad and felt very guilty for not being able to go, yet it was sort of a releif in not having to be soo emtional about it. Last year I sobbed all the way into the cemetery. I thought this year might be easier, but I sobbed just thinking about it this year. Push forward, that is what we must do, wait to till the day we are reunited. Keep the memories alive and in our hearts.
Wishing everyone a Happy and Safe New Years. Pics coming soon, I hope.........I really do not know where the days/weeks are going.

Meet Baloo

This cute little (well acutally really big) guy is joing our family on Christmas Day, this is Paige's gift. He is 6 yrs old and very mellow, and loving. Very excited, he has the biggest puppy eyes I have ever seen. I hope Paige is excited when she meets him.

Tell Everyone You Know About............

2ND ANNUAL 5K WALK & FAMILY FUN DAY

Saturday, June 5, 2010 Eastman Park Windsor, Colorado

Please join the Weatherby Family of the UMDF along with hundreds of walkers as we unite in support of those individuals and families affected by mitochondrial disease. Landon's Hope offers all participants a fun-filled experience with activities for kids, refreshments, mitochondrial disease resources, and much, much more! Additional activities for children will be arranged. Bicycles are permitted in Eastman Park, however, no dogs are allowed. Child care will be provided for parents with small children that wish to participate.

All Proceeds go to the UMDF

Register/Donate at http://www.umdf.org/landonshope

Saturday, June 5, 2010

8:00 - 8:45am -Registration

9:00am - 5K Walk begins
6/5/2010
Fees:
Adult Registration: $25.00Ages 18+
Youth Registration: $10.00Ages 17 and Under
Mito Patient Registration: No FeesAffected Individuals

Santa shopper

Paige's school, like most, has the Santa shopper deal. They can go in and buy presents at the school.
Paige has been wanting to go and I keep forgetting. This morning she walks up to me with the cutuest expression and says "mommy I can do the shopping at my school all by myself at recess, I just need money."
I told her OK, I will give you money and only buy 1 thing you want and something for each cousin, if you have enough, but only buy it if you really like it! I gave her money and her eyes got really bit... Then after carrying it around for a while, She said "Mommy, when I am done with this money, can I reuse it!" LOL!
I wish sweetie!

BRRRRRRRRRRR

Really that's all that describes this crazy-freezing weather. It is snowing and has been for 2 days. It is 7 degrees. Yikes, that is the hi for the day.
This weekend we put up the Christmas tree. Bitter sweet. Our ornaments we made last year with pics on them, some of Landon, some of Paige. It is difficult to look at his stalking hanging knowing he is not physically with us to sing songs and watch the tree lights and run around and tear it all apart. It is difficult thinking about Christmas Day and taking a tree to the cemetery..............so many inoscent children lost to soo many nasty diseases/cancers/tragic accidents.....................so many brave and strong willed parents/siblings/family member/friends trecking through the tough days that must be faced.

Paige thought since the tree was up, Santa must be coming that very night! I keep telling her 2 more weeks of school and her mind keeps comprehending 2 more days! I finally showed her on the Calendar this morning and we counted 10 more days of school...........She seriously broke out crying.............."10 days, that is too long" Poor thing. I still have no idea what I am getting her for Christmas. I did tell her the other day that maybe we could go to the dog rescue and rescue a dog and that could be her Christmas gift. She likes that idea..................I am still thinking on that one :)
I am trying to get her to understand the true meaning of Christmas........... not just presents.

Long Overdo

We had a wonderful Thanksgiving, holidays are different now and always will be, there is a peice of life missing and things will never be the same.................that said, we are happy regardless and we had a great time with my family..... My nephew is abosolutely adorable, at 2 months, starting to smile and I tried to teach him to stick his tongue out. He tried and I am sure at Christmas time, it will be a success!
Paige did great in the car, she did get bored and I heard a few times-------------"How Much Longer", BUT I can't really talk because we picked my dad up half way there and the last 4 hours, I asked him at least 3 times, "HOW MUCH LONGER!"
We also celebrated my princess neices 3rd b-day, she is a riot, such a beauty queen! AHd coffee with an old high school friend! That was tons of fun!

I went to have lunch with Paige at school yesterday, what fun! Those kindergardners are hilarious and full of life and energy! It was a good time.
Also Paige has started to make her own breakfast....................just a bowl of cereal, but still! Waht an accomplishment. I was in the shower when she got up yesterday and she came in to ask where the milk was! She had already pushed the kitchen chair over to get into the cabinet and get her cereal and a bowl, and could not find the milk in the fridge......lol! But she got it out and made herself a bowl of cereal...............did the same again this morning............Now if only she will do that on Saturday/Sunday morning and I can sleep in!

Paige's Award.

I am such a proud mama! Unfortunatley with work I could not make it, but our good friend went and took pics!

From Paige's Teacher:

The 4th graders are teaching everyone what Trustworthiness means and then there is a student from each class that the teachers pick that exhibits this characteristic. I have chosen Paige for this award. You are more than welcome to come see her receive this award (but she doesn’t know about it…shhh!) and if you aren’t able to come, here’s what I’ve written about her for the school to hear:

I would like to have Paige Weatherby nominated for my classroom Trustworthiness award. I can count on Paige to always listen to directions and help others become better students by setting a great example. She is a great friend and continues to work hard in all that she does. Thanks Paige for all your hard work.

Days

Days are passing by, seasons are passing by..... The holidays are here again. This year not as hard as last, but still tough.
The snow makes me want to sleep~! This weekend was a calm, relaxing, lazy weekend. Was ok though, cause we have been soo very busy. We are headed to KC next week to have Thanksgiving and my neices 3rd. b-day party. Will be tons of fun and very exhausting.....traveling 13 hours in 1 day each way.... Well worth it!
I just really don't have much to post-------------I was looking through my closet yesterday and found an unused diaper that I kept , it ripped my heart out.............WHY I have saved things like unused diapers.........I don't know, other than it reminds me of my sweet smelling, chubby cheeked, long eyelashed little boy!
Happy Early Thanksgiving!

Nice days

I was going to start this post as Beautiful days, but as I looked through other blogs before this post, I find another sweet child that Mitochondrial Disease is taking away from his family. It breaks my heart! Our sweet children being taken from us way too soon! When this happens and I get angry I remember Landon's Hope and that fundraiser/walk means so much and really seems to be the only way that I know how to keep fighting for these children. I am really excited to see how many teams we can get signed up this year and how much we can raise for the UMDF!

The weather has been absolutely beautiful here, this weekend we will head up to the mountains, see my sister, neice and nephew. Play some tennis, eat way too much food and laugh! Great weekend ahead!

Been a while

Time is flying by soo fast. We went to Holyoke for Halloween, we had a great time. Josie and Paige played so good together! I feel very blessed that they have each other! Sweet Josie even wore her Landon's Hope shirt from the walk. She is sweet! I got to watch Sarah fall asleep in my arms. That girl has a smile brighter than the sun! Was great to be with Luke and Shan as always!
I had my General Surgeon appt. Great news! Says there is nothing to worry about, the lumps are a group of small cysts that have formed on the inside of the skin. He said sometimes it just happens. He said it could be caused by clogged oil glands and suggested I stay away from antipersperants. They have the Aluminum.......(whatever) in them and it could be causing clogged sebacious/oil glands, therfore causing my groups of tiny cysts. I will need to go find an all natural deodorant. Wouldn't that be something if they go away after that! Will be interesting to find out, as I just know the crap they put in our food/loitons/ect.........are horrible these days! So unless they get bothersome they will just be there, and hopefully they will go away.
All in all good stuff! Other than a few migraines the last few weeks/and 1 fake migraine that prompted me to leave work early and pick Paige up...........................She is doing great! Funny as ever! We were 10 miles outside of Pierce going to Holyoke and Paige says "What world are we in now!" LOL!
She is now loving card games! And I found Pepper (cat) climbing up in the ceiling of the basement this mornnig. Very strange! Not sure why or how but very odd!

Better Day

Today, I am at work with my sweet girl. She did not have school today, so I brought her to work with me until my mom picks up after we all go to lunch! Now that's a good Friday! Today I take inspiration (as usual) from Nie Nie's blog! What love her and Mr Neilson have for each other and the strength they share! I envy the love they have for each other!
The sun is shining and it is supposed to be a beautiful weekend. I am hoping to get some time outside, sitting and reading book 4 of the Twilight series. The 4th and final! I am very excited to see where this story goes!
Thanks for all of your prayers this last week, it has been stressful, strength only goes so far before it hits like a Mack Truck at some point.
I am soo blessed with such great family and friends!
I will go in on November 2 to see the surgeon and biopsy whatever is in my armpits.

Today

Today I feel emotional, Today I woke and layed in bed and cried,
Today I pretended my sweet boy was laying next to me in bed, Today I long to hold him, hold his hand and kiss his sweet, chubby cheeks. Today I cried on the way
to work.

Today, like everyday, I miss him so much, I miss everything
about him.

Very Confused.........

First off The mammo results are fine, nothing to worry about! Thank you Lord for that!

I am really confused because I have very visible lumps/swelling in my armpits. When I originally went to the doctor a few months ago, he said the lump felt like a cyst and unless it grew it should be ok. So it grew from pea size to a quarter size. I can reach in and grab ahold of it. He also originally told me if it did not go away they would remove the "cyst" and biopsy it. So when I went in on Monday, that is what I was expecting. He felt the "cyst" and said, yes it has definitely changed...................but more conern was that I now have something in my left pit as well. They are both very visible to the human eye..................So before they did the mammo, they did an ultrasound of my "cysts" and were not even going to do a mammo........???? I told the sono lady after she sono'd my pits, that I was there for a mammo, not sono's of my pits! She said, oh we like to start here and if they feel they need the mammo they will do it. I said are you sure! Told her I have dealt alot with docs quite and alot of mistakes/misdiagnosis's have been made! Told her the doc told me if the mammo came back ok they would take out the "cyst" and send in for biopsy. She said you don't have a cyst in your armpit................WHAT! What the Hell is in my armpits. She said I should not have told you that, the doc will be right in. Well she leaves, comes back in and says they are going to do a mammo. Go do the mammo, which they told me would take 10 days to get the results. Well the lady did the mammo and said she is going to have the doc come back. OK! I am terrified of course. The doc came back and said everything looks great! Lymphs look good and no lumps in the breast. I say well that's great, but what the hell is growing in my pits! (ok well I did not say that to her but-- really, what the hell is it!) She told me to check up with my doc, but they probably would not want to see me for a month or two. Ok, now everyone I have talked to, my docs included tell me there is never a reason you should have lumps in your pits! SO I am very confused and have a call into my doctors office to see what they want to do from here! I know my pits were huge and lumpie when I was pregnant, but that went away. My sisters both have the same thing when they are PG. SO why can I grab this thing in my armpit and it is growing but it is not a cyst? UGGH! Well I am very pleased with the fact I do not have breast cancer! Will update more when I know anything, if there is anything to know. Why do doctors make me feel like I am 100% crazy! I am not this paranoid freaky lady :)

Enough Already............

UPDATE--Blood Tests came back NORMAL!!! WHOOT WHOOT! See what tomorrow's mammo brings!

****************************
I went to the Doctor a few months back because I had a lump under my right armpit. He said he didn't think it was anything serious, but to give it 45 days and if it grew or did not go away to go back in. It has gotten bigger and I now also have a lump under my left armpit. I had another appointment today to check it out again. He said it has definitely changed and said the left one was very noticeable. He did a breast exam and I have fibroid cysts, which I have always been told. So he is sending me for a mammogram to make sure none of the cysts are anything to worry about. I had labs drawn to check my white cells. UGH!!!! Can I please have a break!
I was feeling good, although a bit worried as I walked in, I really thought he was gonna say oh, they are just cysts and not to worry, we'll take em out biopsy just to be safe and be done with it! I wasn't feeling so sure when I walked out! Please pray this is just nothing as I think it most likely is---Nothing! The mammogram is Wednesday! I am 33, I really thought I didn't have to have one of those nasty things for a good 7 years or so!

She did it!

We went yesterday and got her ears pierced. They pierced both at the same time. She was a bit nervous but not hesitant at all. she did cry just a bit of course, and I choked my tears back! I just took these pics, and she is way more interested in the Mickey Mouse club on TV, than taking pics. Her earings are pretty white daisy's. Today is my parents 40th anniversary. Happy Anniversay mom and dad. We are heading to have a picnic with them and my sisiter's family. Loving this weather.

Sass and Vinegar

That is what my sweet little girl is full of these days! She has such a grown up little attitude. Full of love, life, laughter, and so much fickin sass! I was down stairs ironing my shirt this morning, she was up watching cartoons, when the phone rang. I yelled up and asked her to answer it. I was shocked whne she actually did, usually it goes in one ear and out the other. I heard her talking and yelled "Who Is it?" She yelled It's not for you, It's my dad, -- full of sass!
I went home the other night with her Broncos Cheerleading outfit. I thought she would be soo excited. Well I got the complete opposite reaction. She crossed her arms, stomped her foot and began to cry..... "That's not what I wanted......." Oh my! So she refused to wear it! I am not sure what she thought a Broncos Cheerleader was, but obviously the outfit was not right! She watches Imagination Movers, and I don't know.... Is there a monkey on that show? That's what she wants to be for Halloween...........A MONKEY! Ok cheerleader! Whatever you say!
We are going to maybe get her ears peirced this weekend. I made the mistake of telling her they take the gun and pierce your ears with it...... OOPPS! I meant a ear piercing gun/device thingy! So she thinks she is gonna get shot in the ear! Tough to explain to a 5 year imagination how they peirce your ears! I am not real sure if she will actually go through with this! We'll see.

Mission for the weekend................Find a Monkey Costume--LOL!

Where are the days going?????

Wow, I just learned that today is Wednesday and not Tuesday! WOW! As I put on my socks this morning I remember thinking, ugh it's only Tuesday! I just looked at mckmama's blog and thought how is she posting for Wednesday when it is only Tuesday, I had to check my inbox to see the date. WEIRD!
The days are going so fast/ weeks even. Seems with Paige in school, we come home eat, do homework, trying to read 15-20 minutes each night. That seems like a short time, but really that is a long time for me to keep Paige's attention. But she does great. We finished her homework last night and she wanted to do more!! Awesome! I hope this keeps up!
Bribing works wonders folks, it really does :=
We got her Halloween Costume today, she is going to be a Broncos Cheerleader.
The sun is out and it is warming up!
October is the month 2 years ago that we ended up in the Hospital with Landon....It is the past, but for some reason those memories come back as fresh as if it were yesterday. The season is soo strong. Feelings and emotions all come back. I was standing in the kitchen and paused....I don't know if it was the sound of the fridge, or the lighting but it just took me back 2 years ago. It reminded me of standing in the family kitchen at Children's getting my morning coffee. Holding my sweet boy day and night for a month in the hosptial. As much as I hated it, and as sick as he was, I was holding him. I would not wish that back because he was soo sick.....but I miss him so much!

Snowy Dayz

Cold, Feverish weekend

I picked Paige up from School about 6p on Friday, they were in gym playing around. She saw me and ran over and jumped on me and went almost completely limp with her head on my shoulder. I asked her if she was ok and she said, I am just really tired. I took her out to get a drink of water, she was sooo weak feeling. The after school teacher said she had been acting fine and they were running all over. I took her home and she had a 100.7 temp....that quickly jumped to 101.5, I gave her motin right away, she wanted to go straight to bed, but I wanted her where I could see her. So she layed on the couch, of course the moting kicked in, although her temp did not drop too much, she felt better. The fever lasted through Saturday night. I put her to bed and it broke. She complains of a soar throat, but she has been without a fever since Sat night, so off to school she went today. It snowed again this weekend and barely topped 30 degrees, so we stayed home all weekend in our jammies! Felt good. We did make it out for a quick snowball fight yesterday.
Last night we watched her favorite show, Extreme Home Makeover. She was a bit sad afterwards, seeing a family of 13 brothers, sisters, cousins all in the same house. It is just her and I and she was sad that her brother is not physically in her life. She said "I just wanted Landon to grow" breaks my heart!!! She said she would feel safer if Landon was with us and I told her he was watching over her every move and she was very safe with her little Angel!

Its Snowing...........

It is snowing here in CO, very pretty with the colorful trees.
I guess this means Summer is officially OVER...
That means, putting alot of puzzles together.......getting Paige to bed........and sitting on the heating pad while I watch my favorite TV shows, before I snoooooozzzzzz on the couch.
I must say the fall lineup with new shows has proven to be much better then past years.
Saturday night I watched Trauma..........WOW! The first 15 minutes I almost fell off the couch it was packed with drama and action!
And Cougar Town is hilarious!!! I just have to find time for dishes, laundry, vacuuming, yoga................
I need to boost my energy as fall/snow has me a bit lazy!

Paige is doing great! Loving school, no migraine for a week, I did give her motrin this morning as we had a 30 degree temp drop.........just in case!
She loves putting together puzzles and in fact other than a bit of homework and a quick episode of Handy Manny, that is about all we have been doing.
And of course it is fire safety week, uugghh! Not good for a child who is terrified of fire........bedtime was a bit of a struggle, but I bribed with candy and it worked, so croosing my fingures it continues to work, I do not want another month of not going to bed cause we're too scared!

Mito

Ugh, this disease is nasty, and this time of year is horrible for children with mitochondrial diseases. I follow alot of kiddos on blogs and caringbridge and so many of them are struggling right now. Please say a prayer for all the mito kiddos stuggling with this yucky cold/flu season.
Here is a great video on energy and mito.
http://www.youtube.com/mitoaction#play/all/1/6_2oN1oTK-g

October Pics

Auntie ME!!!

YAY! I am an Auntie again! Yip Yip! I soo wish I was there when sweet baby boy was born!
I have been for all my neices/nephews births and if not there, hours after birth! So this is tough, to be so far away and I hope to see him around Thanksgiving time!!!

In the mean time, Paige is definitely breaking in Kindergarten, yesterday, the nurse called and she had a migraine in the morning, they gave her motrin, let her lay down, then sent her off to lunch, where she spilled juice on herself and needed a change of clothes. I went to take her new pants and she was sleeping, she sat up and I asked her if she was ok to stay at school, (trying to talk her into it!!).
I put her down and she said, I am gonna throw up................and there it was all over the nurses office!! I guess that answered my question! Man we make a great impression :) She spent the afternoon in bed, woke about 330p, and was good as new. This morning, I woke up at 6A with a major, major migraine!!!! After taking yesterday off for her, I could not take more time for dear ME! After a few meds, I am feeling a bit better.
This Colorado weather change must be getting the best of both of us!

Isn't She Lovely.....

Flu shot = No whining, No crying, No bribing! Even when she got the shot!! Ah yeah, it was a good day! And after the flu shot we had a picnic and walked the trail down to the river (yes I MADE her) for some pics! The walk was a whole 5 minutes! Yes I gave her a piggy back ride for half that 5 minutes while carrying our picninc stuff! She loved every minute of the river......... SEE

Doing the weekend DANCE!!! WHOOT WHOOT!

Oh How I love the weekends!!! Especially during the Fall season....
Laying under my warm, cozy blankets as long as Paige will allow me!
I have even figured out how to set my coffe pot to brew all on its own, so when I do pull my
lazy butt out of my covers, I can go poor a hot cup of coffee! Ahhh, the simple things in life!
No school today, Paige is spending the day at a friends house, hopefully being nice! She is very sweet, but when you get two 5 year old GIRLS together, you never know what might come of the day....
Paige has a cold, yucky cough, luckily no fever. We are in tomorrow morning for our flu shots!
Lovely, That means its gonna be a whiny, bribing morning, that's ok! I love it!
80 degrees with red/yellow and brown leaves...........I love fall!
And here's to a realxing time in the backyard finishing up Book 3 of the Twilight Sage!!! Who new vampires could be sooooooooo HOT!
Pretty close to McDreamy and McSteamy!!!!!! I love Grey's Anatomoy

Mitochondrial Disease Awareness week

First I will explain a bit of what my post from yesterday was about. 2 people were talking about an adult child that was sick, and I heard Landon's story come up, which is completley fine, I want his story heard. Unforunatley the first sentence that came out included these words.....But he looked "normal"........Those words are not words I want, nor any mother for that matter, used in a sentence with my childs name. I included myself in the conversaton and started with He was Normal.....................Maybe the words, he looked healthy would ahve settled better........So anyways, I was stuck in a place where I had no one to talk to, so I came here and let it all out. I want Landon's name to come up, I want his story heard, I want to spread awareness for mitochondrial diseases, but I also want it told in a manner that any mother wants... So I am done with this and moving on.
So it is Mitochondrial Disease Awareness Week, and PAige and I lit a 3 wicked candle.....1 light for Landon, 1 light for Marie and 1 light for all the other kiddos and adults who are or who have battled this nasty disease........

"Normal"

I sit here in complete ahhhh, wanting to sit in a corner in tears.
Maybe I am being too sensitive, maybe over reacting......
What does the word "normal" mean to you? My child had a terminal illness, my child could
not walk, talk, eat, sit, laugh..............
My Child could.........melt my heart, taught me how to see his smile in his eyes, taught me life is more than pretending to be perfect, taught me an ever lasting love even though I cannot feel, touch or see him.............
My child was Nomal...................Normal to certain standard I guess that some might not have seen.......................... He looked healthy..............

Normal (My Definiton)

The way God made you..........................NORMAL

Mitochondrial Disease Awareness Week

Join the United Mitochondrial Disease Foundation and like minded organizations around the world as we remember all the children and adults who suffer from mitochondrial disease and to honor those who have lost their battle with mitochondrial disease. Please join the UMDF in lighting a candle to honor all of our families and friends during Awareness Week. Light a candle for Mito on Wednesday, September 23, 2009 or any time during the week.

To help in our efforts to find a cure/treatment

www.umdf.org/landonshope

Weekend in Photos

First we went to Jumpin to celebrate Paige's hard work at school/bedtime

Then I stained thisOOPPS! Stain does not look good slopped on the sidewalk!

Then I sat in my chair and looked up at this......

While I drank one of these......

Today my mom came for a BBQ and brought this (snickers cheese cake from the Cheese Cake Factory!!!

Met some friends at the park, and rented Hotel for dogs and are finally doing this...