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Friday, October 22, 2010

Wierd Dream :(

I had a very strange dream. In my dream, I was at work while my baby was in the hospital with a terminal illness. I know sounds like my life a few years ago, but my baby was in the hospital and I was not there for him. My mom and dad were there and totally disgusted with me because I was not there to care for him. At the end of the dream, I showed up and the baby had a broviac (just like Landon) and I looked at the site and said it is infected that is why he is so sick! No one at the hospital knew how to take care for my baby with such a rare disease. I told them they had to call Dr K (a mito doc in Houston, whom I have never talked to nor met, just read blogs of other mito kiddos talking so highly of this doc). They did and they learned what needed to do to help my baby.
This dream was an all night dream, so real! I woke and fell back to sleep just to keep dreaming the same dream. I am feeling disturbed by this today. WHY was I not there for my baby? And what does this dream mean anyway. I have so rarely, in fact only a few times had a dream about Landon. I wish I had more! Maybe this is it, Mitochondrial disease have no cures, we have no where to take our terminally ill children for treatment. When Landon was diagnosed even his doctor barely remembered it coming up in all of his schooling. I hope this changes, I hope for other families out there that one day they have a place to take there child to for a treatment, with hope for there childs future. A few well known hospitals that have all the answers, all the trials for this very complicated disease.

Thursday, October 14, 2010

ooops!

I some how deleted my "Bed Buddies" post.
In it I discussed Paige's anxiety of going to bed, hence her sleeping with me.
Things have changed pretty quickly and she is once again back in her own bed.
Snap, just like that! Also she is afraid of the shower recently. She did take a shower (vs bath) but of course wouldn't you know it, the water/pipes acted up and made a really loud noise. That has never happened before, horrible timing! Back to the bath's, which is just fine as long as she's getting clean, that's really what matters most! I am really just glad to see some of the anxieties go away!
This weekend my LDR is hopefully coming for a few days, unexpectedly but VERY nice!!
Hope to get to the pumpkin patch!!! It is supposed to be absolutely gorgeous this weekend, so hoping to get in some good BBQ and Marg's as well! Will be a busy one. Of course my camera battery is shot, it takes a special battery. er, I will have to remember to bring that to town for a replacement tomorrow!
Happy weekend!!


Monday, October 4, 2010

Today I am grateful for..................

Paige----Beautiful, spunky and loving
Landon----His complete sweetness
Family
Friends
A safe trip to KS.
Beautiful sun-shiny weather
A roof over my head
My neice that wanted to come back to CO with me--"But shhhhh just drive, don't tell my mom!"
Sno Balls
My LDR going wonderfully****Seriously he's so sweet
My blazing maple that looks amazing right now
The amazing strength God has given me