(I stole the below from Jen's blog) http://jenmagee.blogspot.com
Did you know that, Every 30 minutes, a child is born who will develop a mitochondrial disease by age 10. Each year, 1000 to 4000 children in the United states are born with a mitochondrial disease. While exact numbers of children and adults suffering from mitochondrial disease are hard to determine because so many people who suffer from mitochondrial disease are frequently misdiagnosed, we now know the disease is approaching the frequency of childhood cancers. Many are misdiagnosed with atypical cerebral palsy, various seizure disorders, childhood diseases and diseases of aging. Still others aren't diagnosed until after death.
Did you know that the parts of the body that need the most energy, such as the heart, brain, muscles and lungs, are the most affected by mitochondrial disease. The affected individual may have strokes, seizures, gastro-intestinal problems, swallowing difficulties, blindness, ...deafness, heart and kidney problems, muscle ...failure, heat/cold intolerance, diabetes, immune issues, and liver disease.
Did you know that mitochondrial dysfunction is connected to common diseases such as alzheimers, parkinsons and autism spectrum disorders?
Did you know that mitochondrial diseases are not as rare as you may think? 1 in 200 people carry a mutation that may develop into a mitochondrial disease.
Did you know that there are currently no treatments, cures or anyway to help one with mito? vitamin treatments to try and help restore some energy is all there is. There are many studies out there, and I believe there is a study out there that will work as a cure, but there is just simply not enough funding..so instead children and adults are suffering daily. We have treatments and cures for Erectile dysfunction, hair loss, acne, and so many more minor ailments, and not one for this disease..
Did you know there are many ways to give, funds that will actually go directly to research and raising awareness..
www.umdf.org
This is the montage of Landon's sweet life. Wow--been a while since I have viewed it--Very emotional.
Did you know that, Every 30 minutes, a child is born who will develop a mitochondrial disease by age 10. Each year, 1000 to 4000 children in the United states are born with a mitochondrial disease. While exact numbers of children and adults suffering from mitochondrial disease are hard to determine because so many people who suffer from mitochondrial disease are frequently misdiagnosed, we now know the disease is approaching the frequency of childhood cancers. Many are misdiagnosed with atypical cerebral palsy, various seizure disorders, childhood diseases and diseases of aging. Still others aren't diagnosed until after death.
Did you know that the parts of the body that need the most energy, such as the heart, brain, muscles and lungs, are the most affected by mitochondrial disease. The affected individual may have strokes, seizures, gastro-intestinal problems, swallowing difficulties, blindness, ...deafness, heart and kidney problems, muscle ...failure, heat/cold intolerance, diabetes, immune issues, and liver disease.
Did you know that mitochondrial dysfunction is connected to common diseases such as alzheimers, parkinsons and autism spectrum disorders?
Did you know that mitochondrial diseases are not as rare as you may think? 1 in 200 people carry a mutation that may develop into a mitochondrial disease.
Did you know that there are currently no treatments, cures or anyway to help one with mito? vitamin treatments to try and help restore some energy is all there is. There are many studies out there, and I believe there is a study out there that will work as a cure, but there is just simply not enough funding..so instead children and adults are suffering daily. We have treatments and cures for Erectile dysfunction, hair loss, acne, and so many more minor ailments, and not one for this disease..
Did you know there are many ways to give, funds that will actually go directly to research and raising awareness..
www.umdf.org
This is the montage of Landon's sweet life. Wow--been a while since I have viewed it--Very emotional.
2 comments:
tami~ I had never seen his video until now..I am just in tears for your beautiful boy..I hate this disease, I hate that you can tell by pics, (mine and yours) where they were okay and then mito showed up..big hugs..
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