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Tuesday, September 21, 2010

My Montage 5/15/08 at OneTrueMedia.com

(I stole the below from Jen's blog) http://jenmagee.blogspot.com
Did you know that, Every 30 minutes, a child is born who will develop a mitochondrial disease by age 10. Each year, 1000 to 4000 children in the United states are born with a mitochondrial disease. While exact numbers of children and adults suffering from mitochondrial disease are hard to determine because so many people who suffer from mitochondrial disease are frequently misdiagnosed, we now know the disease is approaching the frequency of childhood cancers. Many are misdiagnosed with atypical cerebral palsy, various seizure disorders, childhood diseases and diseases of aging. Still others aren't diagnosed until after death.

Did you know that the parts of the body that need the most energy, such as the heart, brain, muscles and lungs, are the most affected by mitochondrial disease. The affected individual may have strokes, seizures, gastro-intestinal problems, swallowing difficulties, blindness, ...deafness, heart and kidney problems, muscle ...failure, heat/cold intolerance, diabetes, immune issues, and liver disease.

Did you know that mitochondrial dysfunction is connected to common diseases such as alzheimers, parkinsons and autism spectrum disorders?

Did you know that mitochondrial diseases are not as rare as you may think? 1 in 200 people carry a mutation that may develop into a mitochondrial disease.

Did you know that there are currently no treatments, cures or anyway to help one with mito? vitamin treatments to try and help restore some energy is all there is. There are many studies out there, and I believe there is a study out there that will work as a cure, but there is just simply not enough funding..so instead children and adults are suffering daily. We have treatments and cures for Erectile dysfunction, hair loss, acne, and so many more minor ailments, and not one for this disease..

Did you know there are many ways to give, funds that will actually go directly to research and raising awareness..
www.umdf.org


This is the montage of Landon's sweet life. Wow--been a while since I have viewed it--Very emotional.

Monday, September 20, 2010

Mito Awareness Week


It is Mitochondrial Disease Awareness Week.
Mitochondrial Cells are the powerhouse cells in our bodies, If these cells do not function properly your body's organ's fail. Life is cut way too short. There is NO cure and there is NO treatment.
4 Years ago I had no clue what mitochondrial cells were. I never realized how complex our bodies are and the tiniest of mutation in our cells are repeated throughout our bodies. 1Slight problem creates a HUGE problem. Our lives have been turned upside down by mitochondrial disease. One disease my sweet little guy is no longer fighting. Our God is good and he gets us through the most unbearable of times. I know in time, we will find a Cure for this disease and WE, (you and I) are here to help in that fight!
www.umdf.org

Thursday, September 16, 2010

Loving this Fall weather

I have to admit, I am loving this fall weather for very selfish reasons!
Not only am I enjoying fall for all it is.......
*Leaves changing
*Cooler temps
*Just overall beauty!

But.........

I also am loving it because..........
*It is getting darker earlier, which means I can get Paige in bed earlier and easier!!
*Paige is sleeping in later, which means I am as well!!!
*She crawled into my bed the other morning as she always does, but she was soo cold she snuggled up right next to me and it was sooo cozy, we both fell back to sleep for 30 min!!!!
*I can put the heating pad on my back while I drift off to a deep, wonderful sleep.
*My weeds are dying off without any effort on my part
*And last but not least, I have not had to mow my yard in almost 2 weeks!! And hopefully this weekend will be the last of the season!!!

Now don't get me wrong, I love spring and summer, but I have to admit, I am ready to welcome Fall!!

Monday, September 13, 2010

A new week, A new found energy!

I feel better this week! The bags are minimized, I have more energy and I am eating healthier!!!
All great things!

Have I told you that I am in an LDR??? (long distance relationship)
This is my first experience with this, and typically I would say, No to an LDR or wouldn't even think about it! But this guy is so sweet and worth it--and was not really planned. I mean what are the odds that we would even meet being ind different states AND hit it off so well! It has only been a few month, so we'll see where (if anywhere) this goes. Taking it one step at a time! I am learning so much in the world of dating.

Paige had her volleyball game. This was her first game EVER for ANYTHING! (That she's actually shown up for). She was nervous, and yes she got "dizzy" and "headachy" on the way there. So we talked about boys, and pumped up the music in the car to get her mind off of things! She did great. She was nervous and didn't move much, but she served the ball wonderfully.

Angel---I am so there!! Sooner than later I hope!! I cannot even imagine how wonderful it would be to catch up with you and meet your husband!!!

Thursday, September 9, 2010

Sleepy

I feel like I just cannot get enough sleep this week! Is it because the days are shorter, the cooler weather, allergies, work is to dang boring? Not sure, but I hope this tiredness passes soon!
Maybe I need a BIG change! Something extravagant..Maybe a beach vacation! Hmm.
Paige is in Volleyball and will have her first game on Saturday. I am really looking forward to seeing how she does. Practice is right after school and I am at boring work, so I have yet to see her play. She loves 1st grade still, not as much as she did week 1 but still likes it. If it were up to her she'd stay home all day, eat chicken nuggets dipped in BBQ sauce and watch ICarly!
I am getting sleepy so will sign off.....