Keeping Busy!

Things are moving right along, literally. I drove a moving truck out to MN and now we sit, well on the floor........again literally!
We are here in town a few more weeks, while Paige finishes up school. My last day of work here is May 27. We will stay at my sisters for a few weeks. We have the walk and then the brew fest and then will head on out.
Things have been extremely exhausting getting everything done, but moving right along.
We are in need of your support!
www.umdf.org/landonshope
Hope to see you there!

Some Day I'll figure it out

I tried to upload pics today from flickr. BUT it didn't work. So I'll keep trying and hopefully have some pics to share of Minneosota. I am so not photo upload savy to say the least.
My Sweet Girl turns 7 on Sunday. Easter B-day this year. I cannot beleive 7 already.
Ooooh--- where have the years gone, please time, slow down!
She is having her friend party at Build-A-Bear and we will BBQ with family on Sunday.
Easter egg hunt,burgers, corn on the cob, chip and dip, and of course we will have deviled eggs.
Minnesota & b-day pics to come.
Happy Easter!

Landon's Hope 2011

The Team Leader who raises the most will win a weekend condo at Estes Park, Colorado!
For more information contact: Tami Weatherby

www.umdf.org/landonshope


Event Info:
Landon's Hope
3rd Annual 5K Walk & Family Fun Day
Saturday, June 4, 2011
Eastman Park
Windsor, Colorado

Landon's Hope is a great family-friendly activity. Gather friends, family and co-workers to start a walking team. There are no special skills needed to participate, simply come out and enjoy the day while supporting those affected by mitochondrial disease.

The 5K walk begins at 9 a.m. Kids face painting, food and drinks! Bicycles are permitted in Eastman Park, however, no dogs are allowed. Child care will be provided for parents with small children that wish to participate.

T-shirts will only be guaranteed to those particpants who have
pre-registered.

The Team Leader who raises the most will win a weekend condo at Estes Park, Colorado!
For more information contact: Tami Weatherby
Event Location:
Eastman Park
Windsor, Colorado


Event Schedule:
Saturday, June 4, 2011
8:00 - 8:45am - Registration
9:00am - 5K Walk begins
6/4/2011


Fees:
Adult Registration (with T-Shirt): $25.00
Ages 18+


Adult Registration (without T-Shirt): $20.00
Ages 18+ (Will wear shirt from last year)


Youth Registration (with T-Shirt): $10.00
Ages 17 and Under


Youth Registration (without T-Shirt): $5.00
Ages 17 and Under (Will wear shirt from last year)


Mito Patient Registration: No Fees
Affected Individuals

Where does the time go?

Time just keeps ticking away and I feel like I am finally cathing up on things. We went to Minnesota for Paige's spring break. We both desperatley needed to get away for a bit. We were able to see my mom and spend a few days with her as well as spending time with the boyfriend. Paige had a great time and now we are back to the real world. We are having issued with headaches, the last post I posted the headaches were not as bad as previous, well as they kept coming and kept having to leave work to pick her up. It seems as much as I didn't want to beleive it, she was faking them to get out of testing. They had a few stressful weeks with end of quarter testing and she didn't handle that well. This week are dealing with real migrianes and certain people keeping her in class because of the previous faking episodes. Her teachers, Paige and I are all meeting to clear things up. It's like the boy who cried wolf............. Hopefully we will get this all dealt with. She understands now she why she cannot fake the headaches. On her spring break, we did so much, Mall of America, a ton of swimming, she got her first ride on a 4 wheeler (carefully), parks. And beleive it or not, I did come back with a slightly tanned face. She really had so much fun. Now I am putting my focus on the walk and am trying to get together a prize to go out to the team who raises the most money. More on that once I get the prize confirmed.

Headaches

It has been headache week. I like to just update on here so I can come back and see just what time of year these string of headaches come along. I am calling the latest headaches, they ar enot near as bad as what they had been. She is laying down breifly and then up and about quicker. She has had a stuffy nose and allergies are high right now in our area. I gave her Claratin the other night and she woke with a horrible nightmare. She is just so sensitive to side effects of meds it makes it really tough to try and help.
Over all she is her happy, energetic self. Not much new, it is in the 60's here, hoping to get my bike tire fixed......again! And ride bikes this weekend. So excited for the time change!!
Happy Friday!

Changes....

The house is up for sale and we are moving to MN.
I am so very excited for the move. My only concern is Paige, with her high anxiety, starting a new school. She is so fun and outgoing, I know she will adjust quickly, just worries me of course.
I have to do what I think is best for the both of us. This what not an easy decision for me only for her sake, but a very well thought out decision!

She is doing really well in school and is a bundle of energy!

Before we move, we are doing one more walk to raise funds and awareness for mitochondrial disorders. The walk again this year June 4th to celebrate Landon's B-day (May 30th). This walk once again will be in memory of Landon and Marie.
Once we move, I will still be doing a team in honor of Landon with the Minnesota Energy for Life walk, which I hear is huge! I am excited to be a part of that and carry his legacy with us.
To join or donate for this years fundraiser www.umdf.org/landonshope

This is what I miss the most

Reading through my journal after Landon's passing.
I would do just about anything to have 1 more morning. This is my entry from December 08.

Landon and I used to lay in bed, even though it was only 5AM, it was soo very special.
The sun would start to come up, shine through the little window and light the room.
The birds had been chirping already for hours, I would give his sweet cheeks kisses and hold his hand, and tell him how much I loved him. At times, my mind wondered about what it would feel like when he was gone. I never could have imagined the emptyness I feel without him.

Tto have lost a child is a pain soo deep. The loss of something that no matter what you do, or say they can never be back.
Those mornings are what I miss most about Landon. I think as they days go by and the sun rises and birds chirp earlier, these times will be more often. The emptiness will be there, but nothing, nobody can take away those memories. They are in my heart, in my soul. And for that I will forever be grateful.

She's got it.......

Bieber Fever! I never thought I would HAVE to say that.
We have been watching youtube videos while dancing in the basement.
Yesterday she gave me her tooth fairy money to buy the Justin Beiber CD.

She told me the other day how much she hates school. Snow day yesterday and she says.
"I love school today mom!"
School for her is about weather or not she looks cute, hoping the boys will chase her on the playground, socializing with her friends. I have a feeling I am going to have my hands full as she becomes a teenager.
She did get a note on her report card "not at grade level" I instantly emailed her teacher to see what was going on. I got her signed up for tutoring and she is reading a book everynight, as well as special reading in school. In talking to other parents, it seems they got the same note. I think they are trying to scare us so we make sure they work harder. Well, she is working very hard now that she knows I am in contact with her teacher every week :)

Watching the snow fall, it's amazing how warm 30 degrees feels after -7 the last few days.

Have you ever wanted to

Jump into your computer???
Follow the link, watch the music video and I guarantee you will want to jump right in............................!! Refreshing, warm and beautiful!
Enjoy!

http://ladyantebellum.com/media/videos/american-honey-music-video

Isn't she sweet!

New Year

Happy 2011

We had a great 2 weeks, we spent New Years inside. Paige and I planned on staying up late, watching a movie and eating popcorn. Instead she spent the day on the couch with a tummy bug and trash can next to her. She asked to go to bed at 8p. I was in bed by 10p. We both brought in 2011 with alot of rest! She was feeling much better come morning.
We have really enjoyed the few weeks she has had off from school and my few days off from work. I am usually at work regardless of weather she is at school or daycare, but there's just something about not having to get up and rush around the house getting ready for school!
Back to the grind tomorrow!
Wishing everyone a Happy and Healthy 2011!!!