Keeping Busy!

Things are moving right along, literally. I drove a moving truck out to MN and now we sit, well on the floor........again literally!
We are here in town a few more weeks, while Paige finishes up school. My last day of work here is May 27. We will stay at my sisters for a few weeks. We have the walk and then the brew fest and then will head on out.
Things have been extremely exhausting getting everything done, but moving right along.
We are in need of your support!
www.umdf.org/landonshope
Hope to see you there!

Some Day I'll figure it out

I tried to upload pics today from flickr. BUT it didn't work. So I'll keep trying and hopefully have some pics to share of Minneosota. I am so not photo upload savy to say the least.
My Sweet Girl turns 7 on Sunday. Easter B-day this year. I cannot beleive 7 already.
Ooooh--- where have the years gone, please time, slow down!
She is having her friend party at Build-A-Bear and we will BBQ with family on Sunday.
Easter egg hunt,burgers, corn on the cob, chip and dip, and of course we will have deviled eggs.
Minnesota & b-day pics to come.
Happy Easter!

Landon's Hope 2011

The Team Leader who raises the most will win a weekend condo at Estes Park, Colorado!
For more information contact: Tami Weatherby

www.umdf.org/landonshope


Event Info:
Landon's Hope
3rd Annual 5K Walk & Family Fun Day
Saturday, June 4, 2011
Eastman Park
Windsor, Colorado

Landon's Hope is a great family-friendly activity. Gather friends, family and co-workers to start a walking team. There are no special skills needed to participate, simply come out and enjoy the day while supporting those affected by mitochondrial disease.

The 5K walk begins at 9 a.m. Kids face painting, food and drinks! Bicycles are permitted in Eastman Park, however, no dogs are allowed. Child care will be provided for parents with small children that wish to participate.

T-shirts will only be guaranteed to those particpants who have
pre-registered.

The Team Leader who raises the most will win a weekend condo at Estes Park, Colorado!
For more information contact: Tami Weatherby
Event Location:
Eastman Park
Windsor, Colorado


Event Schedule:
Saturday, June 4, 2011
8:00 - 8:45am - Registration
9:00am - 5K Walk begins
6/4/2011


Fees:
Adult Registration (with T-Shirt): $25.00
Ages 18+


Adult Registration (without T-Shirt): $20.00
Ages 18+ (Will wear shirt from last year)


Youth Registration (with T-Shirt): $10.00
Ages 17 and Under


Youth Registration (without T-Shirt): $5.00
Ages 17 and Under (Will wear shirt from last year)


Mito Patient Registration: No Fees
Affected Individuals

Where does the time go?

Time just keeps ticking away and I feel like I am finally cathing up on things. We went to Minnesota for Paige's spring break. We both desperatley needed to get away for a bit. We were able to see my mom and spend a few days with her as well as spending time with the boyfriend. Paige had a great time and now we are back to the real world. We are having issued with headaches, the last post I posted the headaches were not as bad as previous, well as they kept coming and kept having to leave work to pick her up. It seems as much as I didn't want to beleive it, she was faking them to get out of testing. They had a few stressful weeks with end of quarter testing and she didn't handle that well. This week are dealing with real migrianes and certain people keeping her in class because of the previous faking episodes. Her teachers, Paige and I are all meeting to clear things up. It's like the boy who cried wolf............. Hopefully we will get this all dealt with. She understands now she why she cannot fake the headaches. On her spring break, we did so much, Mall of America, a ton of swimming, she got her first ride on a 4 wheeler (carefully), parks. And beleive it or not, I did come back with a slightly tanned face. She really had so much fun. Now I am putting my focus on the walk and am trying to get together a prize to go out to the team who raises the most money. More on that once I get the prize confirmed.

Headaches

It has been headache week. I like to just update on here so I can come back and see just what time of year these string of headaches come along. I am calling the latest headaches, they ar enot near as bad as what they had been. She is laying down breifly and then up and about quicker. She has had a stuffy nose and allergies are high right now in our area. I gave her Claratin the other night and she woke with a horrible nightmare. She is just so sensitive to side effects of meds it makes it really tough to try and help.
Over all she is her happy, energetic self. Not much new, it is in the 60's here, hoping to get my bike tire fixed......again! And ride bikes this weekend. So excited for the time change!!
Happy Friday!

Changes....

The house is up for sale and we are moving to MN.
I am so very excited for the move. My only concern is Paige, with her high anxiety, starting a new school. She is so fun and outgoing, I know she will adjust quickly, just worries me of course.
I have to do what I think is best for the both of us. This what not an easy decision for me only for her sake, but a very well thought out decision!

She is doing really well in school and is a bundle of energy!

Before we move, we are doing one more walk to raise funds and awareness for mitochondrial disorders. The walk again this year June 4th to celebrate Landon's B-day (May 30th). This walk once again will be in memory of Landon and Marie.
Once we move, I will still be doing a team in honor of Landon with the Minnesota Energy for Life walk, which I hear is huge! I am excited to be a part of that and carry his legacy with us.
To join or donate for this years fundraiser www.umdf.org/landonshope

This is what I miss the most

Reading through my journal after Landon's passing.
I would do just about anything to have 1 more morning. This is my entry from December 08.

Landon and I used to lay in bed, even though it was only 5AM, it was soo very special.
The sun would start to come up, shine through the little window and light the room.
The birds had been chirping already for hours, I would give his sweet cheeks kisses and hold his hand, and tell him how much I loved him. At times, my mind wondered about what it would feel like when he was gone. I never could have imagined the emptyness I feel without him.

Tto have lost a child is a pain soo deep. The loss of something that no matter what you do, or say they can never be back.
Those mornings are what I miss most about Landon. I think as they days go by and the sun rises and birds chirp earlier, these times will be more often. The emptiness will be there, but nothing, nobody can take away those memories. They are in my heart, in my soul. And for that I will forever be grateful.

She's got it.......

Bieber Fever! I never thought I would HAVE to say that.
We have been watching youtube videos while dancing in the basement.
Yesterday she gave me her tooth fairy money to buy the Justin Beiber CD.

She told me the other day how much she hates school. Snow day yesterday and she says.
"I love school today mom!"
School for her is about weather or not she looks cute, hoping the boys will chase her on the playground, socializing with her friends. I have a feeling I am going to have my hands full as she becomes a teenager.
She did get a note on her report card "not at grade level" I instantly emailed her teacher to see what was going on. I got her signed up for tutoring and she is reading a book everynight, as well as special reading in school. In talking to other parents, it seems they got the same note. I think they are trying to scare us so we make sure they work harder. Well, she is working very hard now that she knows I am in contact with her teacher every week :)

Watching the snow fall, it's amazing how warm 30 degrees feels after -7 the last few days.

Have you ever wanted to

Jump into your computer???
Follow the link, watch the music video and I guarantee you will want to jump right in............................!! Refreshing, warm and beautiful!
Enjoy!

http://ladyantebellum.com/media/videos/american-honey-music-video

Isn't she sweet!

New Year

Happy 2011

We had a great 2 weeks, we spent New Years inside. Paige and I planned on staying up late, watching a movie and eating popcorn. Instead she spent the day on the couch with a tummy bug and trash can next to her. She asked to go to bed at 8p. I was in bed by 10p. We both brought in 2011 with alot of rest! She was feeling much better come morning.
We have really enjoyed the few weeks she has had off from school and my few days off from work. I am usually at work regardless of weather she is at school or daycare, but there's just something about not having to get up and rush around the house getting ready for school!
Back to the grind tomorrow!
Wishing everyone a Happy and Healthy 2011!!!

Christmas Concert

It went great. She was so excited and had a great time. She was nervous up there sining, she swayed her arms and moved side to side, but she did great!!! She has her Christmas party today and couldn't be more excited to have the next 2 weeks off.
She said to me in the car last night
P- "mommy Sabrina in my class is really cute and all the boys like her"
Me-" oh sweetie you are very cute too"
P-"I know I am"
ME-" Besides you don't want a boy to like you just becuase your cute, you want them to like who you for who you are on the inside and because your funny and a great person"
P-"oh"
Me-"Shawn (LDR--"boyfriend") doesn't like me cause he thinks I'm cute, he likes me cause he thinks I am funny"
P-"UH, No your not mom!"
Too funny! Why is she thinking about boys when she is only 6 anyways! I told her to have fun with her friends and not to worry about stinky BOYS!!

She has her last Basketball game tomorrow and my sis and neice and nephew are coming down for the night. Should be a fun, relaxing weekend. I really need to do some Christmas shopping!

A bit of bragging and such

This is how we got our Christmas tree home.







I unloaded the tree off the roof of the car.........by myslef. I then proceeded too cut the bottom off with a hand saw. After hand saw would go no further (or maybe it was my weak muscles), I grabbed the sharpest knife in my kitchen and proceeded to fail. I remembered there was a skill saw in the garage..........WHOA BABY! My first time using that thing, and I am very blessed to still have all of my body parts. BUT that did the job! Managed to get the tree all set up and it looks great!
We had a great weekend with friends and family. Back to the grind and I think I better get started on Christmas shopping soon. Paige has her very first musical presentation at school tomorrow night. I am extremely excited although a bit nervous for her at the same time. Hoping her anxiety is on the low side! I showed her how to stand with her knee's bent a bit.
My older sister locked her knees once on the bleechers and that WAS NOT GOOD!

Hittin the Mountains

We are headed up to see a good friend from High School this weekend. Will be nice to catch up and have some good laughs.
Taking Paige to get her glasses checked to make sure the prescription we got was the right one and make sure they are fitting right. She has had numerous headaches again and dizziness. Hoping it is just the glasses and if not, off to the doctor's we go. I really do think it is her glasses since she is standing right smack dab infront of the TV screen. I think I tell her every 30 seconds to back up and sit down!
She has been acting fine other than that. Been dancing around the living room and jumpin off the couch having a great time. I taught her a few moves! The Roger Rabbit and The Running Man!
Happy Weekend!

Mornings

My 6 yr old has decided to act like a teeny bopper and have her hair curled in the mornings. One day she won't let me brush it and the next I am brushing, hairspraying and curling. Her hair is so fine, like mine, and will curl a bit but a few minutes later goes pretty much straight. Day 1-- I heard a small wimper "my hair won't curl right" Day 2-- It was a screaming, crying mess of all messes!!! "my hair won't curl, it looks ugly, I AM NOT GOING TO SCHOOL!!" AHH!!!! Needless to say we were 3 minutes late to school. Day 3-- I moosed the you know what outta that fine hair and we got amazing curls and ran off to school to make it on time and I kept my fingures crossed that those curls stayed in until she took her face out of a mirrors site! SUCCESS!!! Day 4--She did not ask for her hair curled and as I tried to brush it I got the old "Ouch that hurts, don't touch my hair". Oh yes, it's a good day!

We had a great Thanskgiving. Went to Minnesota to see the, well ok, I guess I can say it............Boyfriend. (I don't know why that sounds so weird to say.)
Paige and I trucked 12 hours. We had great food and a great time! She did pretty amazing in the car, thanks to the DVD player and tons of patience!

She is wearing....

JEANS!!! For the today anyways. I am sure I will hear all about how uncomfortable they are when we get home :)

And yes those are ear muffs! She is ready for the cold weather!

My Sweet Butterfly

She had a good time, didn't want to go to too many houses but she had a great time! She really was more excited to hand out candy, we only had 3 groups show up......but that left alot of candy for us to eat!!

Wierd Dream :(

I had a very strange dream. In my dream, I was at work while my baby was in the hospital with a terminal illness. I know sounds like my life a few years ago, but my baby was in the hospital and I was not there for him. My mom and dad were there and totally disgusted with me because I was not there to care for him. At the end of the dream, I showed up and the baby had a broviac (just like Landon) and I looked at the site and said it is infected that is why he is so sick! No one at the hospital knew how to take care for my baby with such a rare disease. I told them they had to call Dr K (a mito doc in Houston, whom I have never talked to nor met, just read blogs of other mito kiddos talking so highly of this doc). They did and they learned what needed to do to help my baby.
This dream was an all night dream, so real! I woke and fell back to sleep just to keep dreaming the same dream. I am feeling disturbed by this today. WHY was I not there for my baby? And what does this dream mean anyway. I have so rarely, in fact only a few times had a dream about Landon. I wish I had more! Maybe this is it, Mitochondrial disease have no cures, we have no where to take our terminally ill children for treatment. When Landon was diagnosed even his doctor barely remembered it coming up in all of his schooling. I hope this changes, I hope for other families out there that one day they have a place to take there child to for a treatment, with hope for there childs future. A few well known hospitals that have all the answers, all the trials for this very complicated disease.

ooops!

I some how deleted my "Bed Buddies" post.
In it I discussed Paige's anxiety of going to bed, hence her sleeping with me.
Things have changed pretty quickly and she is once again back in her own bed.
Snap, just like that! Also she is afraid of the shower recently. She did take a shower (vs bath) but of course wouldn't you know it, the water/pipes acted up and made a really loud noise. That has never happened before, horrible timing! Back to the bath's, which is just fine as long as she's getting clean, that's really what matters most! I am really just glad to see some of the anxieties go away!
This weekend my LDR is hopefully coming for a few days, unexpectedly but VERY nice!!
Hope to get to the pumpkin patch!!! It is supposed to be absolutely gorgeous this weekend, so hoping to get in some good BBQ and Marg's as well! Will be a busy one. Of course my camera battery is shot, it takes a special battery. er, I will have to remember to bring that to town for a replacement tomorrow!
Happy weekend!!

Today I am grateful for..................

Paige----Beautiful, spunky and loving
Landon----His complete sweetness
Family
Friends
A safe trip to KS.
Beautiful sun-shiny weather
A roof over my head
My neice that wanted to come back to CO with me--"But shhhhh just drive, don't tell my mom!"
Sno Balls
My LDR going wonderfully****Seriously he's so sweet
My blazing maple that looks amazing right now
The amazing strength God has given me